John and I would like to thank everyone who supported the
Lemonade and Love for Sam Luau last weekend…all of you who helped organize,
set-up, run a stand, or clean-up; or who
donated time, money, and energy to this great event—Thank You!!! I don’t know how many people ended up coming,
but it was a lot. We raised a lot of
money (still being counted) and a lot of awareness for the childhood cancer
cause….and we couldn’t be more proud of everyone who participated and contributed
and helped make this happen. Many of you
came from near and far to be a part of it and we want you to know that we
appreciate each and every one of you and all of your efforts!
Speaking of raising awareness and money for childhood
cancer, for the last few months John and I have been working on setting up our
own non-profit charitable foundation. We
are proud to now be able to announce that the Samuel Jeffers Childhood Cancer
Foundation is a reality! We received our
Letter of Determination granting us 501-c-3 tax exempt status from the IRS on
Tuesday this week, culminating several months of paperwork and some deep
thinking.
We thought long and hard about the pros and cons of forming
our own Foundation. We are aware that
there are many other such foundations—often formed by families just like ours,
who have lost a child to cancer. And we
are aware that we are perhaps contributing to the problem of having too many
organizations spread too thin to do much good.
We seriously considered just concentrating our efforts on only one or
two childhood cancer organizations, so that we could have the most impact with
our limited resources.
But in the end, we decided to move forward with Sam’s Foundation
(whose tagline is “Cooking up a Cure for
Childhood Cancer”) because we would like to make an impact on a somewhat
narrower—but desperately in need of help—segment of the childhood cancer
landscape.
One of the most pressing problems with childhood cancer is
that childhood cancer is not just one disease. There are many different types and many more
subtypes, each one requiring specific and unique research to develop the best
method of treatment.
While we have (very thankfully) been successful at treating
certain types of pediatric cancer—thanks to increased awareness and a modicum
of funding—the success rates for many of the other types of pediatric cancer
are not good. These rarer types of
childhood cancer are not so rare when viewed as a whole, as together they
account for a good portion of all childhood cancers. Because so few children are diagnosed with
these specific rarer types, little research is done on each one
separately.
A sort of “vicious circle” therefore exists with respect to
most types of pediatric cancer: They are
rare enough that little awareness exists and very little or no research is
being done; therefore no new drugs or therapies are developed; therefore
children affected by some of these types of cancers are sentenced to almost
certain death. No child should ever have
to face that kind of future. We hope
Sam’s Foundation will be able to make a positive impact on some of these rarer
types of children’s cancer.
Having our own Foundation doesn’t mean that we are
abandoning Alex’s Lemonade Stand or St. Baldrick’s. On the contrary, we will continue to support
these great organizations and their missions to end childhood cancer. They are doing great work and they continue
to run “lean and mean” in the fight against kids’ cancer, by holding their
expenses down and contributing an above-average amount of donated funds to
directly support children’s cancer.
We will partner with these organizations where we can and
fund our own research projects when feasible, and together we hope to make an
impact that will change the lives of children forever. And we thank all of you for helping us in
this mission.
Here's a sampling of the community that made this event happen.
The Lemonade Moms: Erl K., Harmony B., Michelle D., Mary M. |
The crowd |
Congratulations on your foundation! My daughter/son-in-law went through the same decision-making process before starting their own nonprofit. We are still waiting for our 501(c)(3) approval....I'm particularly anxious since I did all of the paperwork and filing....but "Unravel" (for unravel pediatric cancer) is up and running with all proceeds going to research. So far, most has gone to Stanford...where Jennifer's tumor was donated....to a project working on the dipg puzzle. I don't know if all money earned will go to these "rarer" subtypes....but you're certainly correct in saying that research seems to be most needed for them. The whole underfunding issue (especially, in my view, by our government/with our money) is a shame and needs to be brought to the attention of every person in this country. It makes me so very angry that so much of the fundraising is left to be done by grieving families such as yours....the very last people who should have that heavy burden thrust upon them in addition to everything else that they have and are still enduring. But...that seems to be the way things are going....so I'm proud of you two of Elizabeth ("Libby") and Tony and of all of us who work in memory and to honor our precious and oh-so-innocent children.
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