Tuesday, September 20, 2016

Diagnosis Day

Today marks the 4-year anniversary of Sam’s diagnosis with brain cancer.  Just a little over four years ago, we were a happy family of five, and everything seemed nearly perfect in our little corner of the world.  Everyone was healthy, happy and had their entire lives to look forward to.  And then, in an instant, our lives changed—permanently. 

Future Scholar
We will never know what our Sammy could have grown up to be.  Instead of a world of possibilities Sabrina and I now have only a world of what might have been.  Cancer robs so much from the world when it takes an innocent soul. 

I could write about how unfair life is.  I could write a long torturing post about all of the bad things that Sam and we experienced from the time of his diagnosis through his crappy treatment and ultimately his death.  I could also curl up into a little ball in the corner and cry and feel sorry for myself. 
Future Rockstar

Instead, I just want to reiterate the main message that we are trying to spread:  There is currently an abysmal amount of money spent on childhood cancer research; money spent on adult cancer research seldom trickles down to benefit children with cancer because their bodies cannot take the same kinds of treatment that adults can; and, the critical point, money spent on childhood cancer research can and does “trickle up” to benefit adults.  When we fund childhood cancer research we are in fact funding adult medical research as well.

Last blog I wrote about why we fund the Samuel Jeffers Thalamic Glioma Fellowship at Weill-Cornell Medicine .  I used Project Violet, another research effort we support, as an example of ground-breaking, pioneering work done by doctors and researchers who have devoted their lives to studying childhood cancer and who discovered a tool—Tumor Paint—that now stands to benefit all of society.  Today, I’d like to give another example of “trickle up”. 
Future Racer

Long-time followers will know that Dr. Mark Souweidane, head pediatric neurosurgeon at Weill-Cornell in NYC and co-director of the Children’s Brain Tumor Project, is the spearhead of our efforts to crack the thalamic glioma code.  We stumbled across Dr. S through our research into promising pediatric cancer treatments for DIPG—another deadly brain tumor that kills far too many children.  Dr. S has pioneered a drug delivery mechanism called Convection Enhanced Delivery (CED) whereby drugs or other therapeutic agents can be delivered directly into the tumor site, by-passing the blood brain barrier and offering a fighting chance for the medicine to have some effect on hard-to-reach tumors.  In this trial, Dr. Souweidane was able to achieve concentrations of 1,000 times or more than what can be achieved with traditional IV chemotherapy. He was also able to design and test new ways to measure those concentrations at the tumor site and monitor how long the drug stayed in the tumor. Read more here. 

Future Banker
Future Engineer
As wonderful as are the direct benefits to children of such a project, the translational benefits of using CED for DIPG has the potential to further evolve into a project that Dr. S expects to define many additional elements of local drug delivery to the brain.  Aspects such as device design, dosimetry measurements, drug labeling, monitoring pharmacokinetics, and many others, can be applied to not only other brain tumor strategies but any disease in which drug delivery to the brain is crucial.  What this means is that Dr. S’s work on children’s brain tumors could affect treatment for a wide host of other ailments including infections, degenerative diseases like dementia or Alzheimer’s, movement disorders, and epilepsy.  DIPG—a children’s brain tumor—has afforded us the opportunity to translate an innovative and adventurous treatment paradigm for children into an actual clinical tool with widespread potential applications—for children and adults alike—even outside the world of cancer treatment. 
Future Exec
 
This is yet another example of how by helping children with cancer we are in fact helping ourselves.  By funding children’s cancer research, not only are we working to save the lives of our precious offspring; we are also potentially saving the lives of our siblings, parents, grandparents and ourselves.  We believe that’s a very wise investment. 

Future Writer
When Sabrina and I ask for donations to Sam’s Foundation, it’s important to know that we in no way directly benefit from that.  No one at Sam’s Foundation earns a salary or receives any benefits.  100% of the money that people give to “Cooking up a Cure…” goes to childhood cancer research or to local families with children battling cancer.  Click here to see where the thermometer is right now as we work towards our funding goal.  We need to raise $75,000 annually in order to fund the Thalamic Glioma program at Weill-Cornell, and we need your help!
Future Chef
Future Scientist


Thank you so much for your continued support.

John Jeffers
Cooking Up a Cure for Childhood Cancer

13 comments:

  1. i was in a trauma, having to deal with brain cancer and tumours, I kept on having seizures and i thought I would lose my sanity and my life, my brother got the contact of a powerful herbal doctor, whose herbal medicine cured my brain cancer, now i am cancer free! He is a genius in dealing with cancer and all brain related issues, you also can contact him on joseherbals28@gmail.com

    ReplyDelete
    Replies
    1. I'm here to share to the worldwide that Dr.Zuku is a Powerful Herbal Medicine man. that can cure your disease if you can only contact him and let him help you. I was cured from my Herpes Disease. after suffering since 9years ago. but when i contact him on the internet. he gave me a Natural cure that ended my suffering after using it for two weeks. i went to check myself on the hospital and i was tested negative. I can't more happier but to say thank you sir and i use this medium to say to everyone don't waste any time to contact this powerful herbal Dr,Zuku On any Kind of Disease he is Ready to help you. You can reach him through

      Email:drzukuspelltemple@gmail.com

      Dr.Zuku Cell Number:+16177296273

      contact Dr Zuku Blogs: https://drzukuspelltemple.blogspot.co.ke/

      Dr.Zuku Website: https://drzukuspelltemplewhereallkindsofproblemisbesolve.wordpress.com/contact/

      Delete
  2. My Name Is Sandra Dave, I Am Here To Give My Testimony About A Doctor Who Helped Me In My Life. I Was Infected With HERPES SIMPLEX VIRUS In 2015, I Went To Many Hospitals For Cure But There Was No Solution, So I Was Thinking How Can I Get A Solution Out So That My Body Can Be Okay. One Day I Was In The River Side Thinking Where I Can Go To Get Solution. So A Lady Walked To Me Telling Me Why Am I So Sad And I Open Up All To Her Telling Her My Problem, She Told Me That She Can Help Me Out, She Introduce Me To A Doctor Who Uses Herbal Medication To Cure HERPES SIMPLEX VIRUS And Gave Me His Email, So I Mail Him. He Told Me All The Things I Need To Do And Also Give Me Instructions To Take it, Which I Followed Properly. Before I Knew What Is Happening After Two Weeks The HERPES SIMPLEX VIRUS That Was In My Body Got Vanished . So If You Are Also Heart Broken And Also Need A Help, You Can Also Email Him ekpikuspellhomeofgrace@hotmail.com or ekpikuspellhomeofgrace@gmail.com.
    You Can Also Contact Him If Are Diagnosed With Any The Virus Below
    {1}HIV And AIDS
    {2}Diabetes
    {3}Epilepsy
    {4} Blood Cancer
    {5} He Can Make You Get Pregnancy
    {6.} HPV
    {7} ALS
    {8} Hepatitis
    {9} Diabetes
    {10}Love Spell

    ReplyDelete
  3. I am so Happy to be writing this article in here, i am here to explore blogs forum about the wonderful and most safe cure for HERPES SIMPLEX VIRUS . I was positive to the deadly Virus called HERPES and i lost hope becaand use i was rejected even by my closet friends. i searched online to know and inquire about cure for HERPES and i saw Dr Ekpiku testimony online on how he was cured so many persons from Herpes Disease so i decided to contact the great herbalist because i know that nature has the power to heal everything. i contacted him to know how he can help me and he told me never to worry that he will help me with the natural herbs from God! after 2 days of contacting him, he told me that the cure has been ready and he sent it to me via DHL and it got to me after 4 days! i used the medicine as he instructed me (MORNING and EVENING) and i was cured! its really like a dream but i'm so happy! that’s the reason i decided to also add more comment of Him so that more can be saved just like me! and if you need his help,contact his Email now (ekpikuspellhomeofgrace@hotmail.com) or (ekpikuspellhomeofgrace@gmail.com) him on whatsApp number:+2348073673757 or text/call me 16506538578....

    ReplyDelete
  4. I've seen the great importance of natural herbs and the wonderful work they have done in people's lives. I wonder why people still spend their money on surgery, injections and drugs each time they are sick. Natural herbs can cure all kinds of illness including herpes, diabetics, asthma, HIV, hepatitis, etc. I've seen it with my own eyes. I was cured of Herpes and my aunt and her husband were cured of HIV by high priest DR NORUWA who uses natural herbs to cure different kind of illness. He is also a spell caster who also help me cast a spell that bring my ex girlfriend back to me without any delay it was after he cured me of herpes that make me trust him and believe in him to also help me get my ex back and he did it for me. I broke up with my ex with just little misunderstanding hoping we will get back shortly,but things was growing worse until i contacted high priest who help me with his natural herbs to cure my herpes also help me with love spell to bring my ex back, without charging me any money for his work i only provide the items he needed to cast the spell for me, i have never believed in a spell caster until i come across High priest DR NORUWA, Well it will be of great sin if i should go out from here without dropping the contact of this great and world best famous spell caster, email him via DRNORUWASPELLHOME@GMAIL.com.

    ReplyDelete

  5. I am really happy that i and my husband are cured of (HERPES SIMPLEX VIRUS)
    with the herbal medicine , i have been suffering from this disease for the
    past 3 years without solution until i came across the email of this doctors
    who have cure so many people with his herbal medicine, i also choose to
    give him a chance to help me and my husband, he told me what to do and i
    kindly did it, and he gave us his herbal medicine and direct me on how to
    use it, i also follows his instruction for use and he ask us to go for a
    check up after 3 weeks and which i did, to my greatest surprise our result
    came out as negative, we are really happy that there is someone like this
    Dr AZEN who is ready to help anytime any day. to all the readers and viewers
    that is doubting this testimony stop doubting it and contact this Dr AZEN
    and see if he will not actually help you. i am not a stupid woman that i
    will come out to the public and start saying what someone have not done for
    me. azentemple@gmail.com or call him and also whatsapp him on
    +2348083325148 ,thank you

    ReplyDelete

  6. I am really happy that i and my husband are cured of (HERPES SIMPLEX VIRUS)
    with the herbal medicine , i have been suffering from this disease for the
    past 3 years without solution until i came across the email of this doctors
    who have cure so many people with his herbal medicine, i also choose to
    give him a chance to help me and my husband, he told me what to do and i
    kindly did it, and he gave us his herbal medicine and direct me on how to
    use it, i also follows his instruction for use and he ask us to go for a
    check up after 3 weeks and which i did, to my greatest surprise our result
    came out as negative, we are really happy that there is someone like this
    Dr AZEN who is ready to help anytime any day. to all the readers and viewers
    that is doubting this testimony stop doubting it and contact this Dr AZEN
    and see if he will not actually help you. i am not a stupid woman that i
    will come out to the public and start saying what someone have not done for
    me. azentemple@gmail.com or call him and also whatsapp him on
    +2348083325148 ,thank you

    ReplyDelete
  7. I was diagnosed of Herpes in 2014 and I have tried all possible means to get the cure but all to no avail, until i saw a post in a health forum about a Herbal Doctor(Dr Aloha) who prepares herbal medicine to cure all kind of diseases including Herpes,at first i doubted if it was real but decided to give it a try,when i contacted Dr Aloha through his Email: Alohaherbalhome@gmail.com he guided me and prepared a herbal medicine and sent it to me via courier Delivery service,when i received the package (herbal medicine) He gave me instructions on how to consume it,i started using it as instructed and i stooped getting outbreaks and the sores started vanishing,could you believe i was cured of this deadly virus within 10-14 days of using this REMEDY,couldn't believe the healing at first until i went for a check-up,indeed i was tested negative to HERPES.Contact this great herbal Doctor today via Email: Alohaherbalhome@gmail.com and get cured permanently. or Call/Text: +1(312)967 4787

    ReplyDelete
  8. I'm here to share to the worldwide that Dr.Zuku is a Powerful Herbal Medicine man. that can cure your disease if you can only contact him and let him help you. I was cured from my Herpes Disease. after suffering since 9years ago. but when i contact him on the internet. he gave me a Natural cure that ended my suffering after using it for two weeks. i went to check myself on the hospital and i was tested negative. I can't more happier but to say thank you sir and i use this medium to say to everyone don't waste any time to contact this powerful herbal Dr,Zuku On any Kind of Disease he is Ready to help you. You can reach him through

    Email:drzukuspelltemple@gmail.com

    Dr.Zuku Cell Number:+16177296273

    contact Dr Zuku Blogs: https://drzukuspelltemple.blogspot.co.ke/

    Dr.Zuku Website: https://drzukuspelltemplewhereallkindsofproblemisbesolve.wordpress.com/contact/

    ReplyDelete
  9. I'm here to share to the worldwide that Dr.Zuku is a Powerful Herbal Medicine man. that can cure your disease if you can only contact him and let him help you. I was cured from my Herpes Disease. after suffering since 9years ago. but when i contact him on the internet. he gave me a Natural cure that ended my suffering after using it for two weeks. i went to check myself on the hospital and i was tested negative. I can't more happier but to say thank you sir and i use this medium to say to everyone don't waste any time to contact this powerful herbal Dr,Zuku On any Kind of Disease he is Ready to help you. You can reach him through

    Email:drzukuspelltemple@gmail.com

    Dr.Zuku Cell Number:+16177296273

    contact Dr Zuku Blogs: https://drzukuspelltemple.blogspot.co.ke/

    Dr.Zuku Website: https://drzukuspelltemplewhereallkindsofproblemisbesolve.wordpress.com/contact/

    ReplyDelete
  10. I Was Diagnosed With Herpes 8 Year Ago I lived In Pain, With The Knowledge That I Wasn't Going To Ever Be Well Again I Contacted So Many Herbal Doctors And Also Visited Hospitals All In Vain My Condition Never Got Better I Was Determined To Get Cured, So One Day As I Was Browsing True The Internet I Saw A Past About This Particular Woman (Wilshere Stancy) Posted On How Dr Iyoha Saved Her From The Virus With Herbal Medicine I Decided To Contact Dr Iyoha On His Email Address: driyohasolutiontemple@gmail.com We Spoke On The Issue I Told Him All That I Went Through And He Told Me Not To Worry That Everything Will Be Fine Again So He Prepared The Medicine And Sent It To Me And Told Me On How To Use It,After 2 Weeks Of Usage I Went To See Doctor For Test ,Then The Result Was Negative,Am The Happiest Woman On Earth Today..Thanks To Dr Iyoha God Bless You, You Can Also Reach Him With This Details;

    Email: driyohasolutiontemple@gmail.com

    Call +1 (407) 337-9869
    He also cure these virus
    {1}HIV And AIDS
    {2}Diabetes
    {3}Epilepsy
    {4} Blood Cancer
    {5} HPV
    {6} ALS
    {7} Hepatitis
    {8} Vitiligo

    ReplyDelete
  11. Good day lady's and gentlemen i wish to thank this great herbal Doctor Benson please listening to my story, herpes has been ongoing in my family for long..I lost both parents to herpes and it is so much pain has not been able to get over. As we all know medically, there is no solution or cure for herpes and the cost for Medication is very expensive. Someone introduced me to a man (Native Medical Practitioner) . I showed the man all my Tests and Results and I told him have already diagnosed with herpes and have spent thousands of dollars on medication. I said I will like to try him cause someone introduced me to him. He asked me sorts of questions and I answered him correctly. To cut the story short, He gave me some medicinal soaps and some herbs(have forgot the name he called them) and he thought me how am going to use them all. At first I was skeptical but I just gave it a try. I was on his Medication for 2 weeks and I used all the soaps and herbs according to his prescription. That he will finish the rest himself. And I called him 3 days after, I arrived and I told him what is the next thing he said, he has been expecting my call. He told me to visit my doctor for another test. Honestly speaking, i never believe all he was saying until after the test when my doctor mention the statement that am, herpes negative and the doctor started asking me how do I do it....Am telling this story in case anyone may need this man’s help. He is the Great Doctor Benson here is via email address (drbensonsolutioncure52@gmail.com) or call Him via his mobile number +2348141972381.

    Thanks Regard...

    ReplyDelete
  12. WOW IT IS REAL!!! HOW I FINALLY GOT RID OF MY GENITAL HERPES

    Hello everyone, my name is E.Juliet From Canada,I have been suffering from (HERPES) disease for the past years and had constant pain,getting weak,having headache and also get hot in my knees.And pray all day,I had faith in God that i would be healed someday.This disease started circulate all over my body and i have been taking treatment from my family doctor, few weeks ago i came on search on the internet if i could get any information concerning the prevention of this disease, on my search i saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by DR OKPODU and i took the email address of this DR and i contact him for my sickness if he can be of help, so i wrote to DR OKPODU and told him about my (HERPES Virus) he told me not to worry that i was going to be cured but iwas not so sure,but i gave it a try well after all the procedures and remedy given to me by DR, less than a week i started experiencing changes all over my body and he assured me that in few weeks i will be ok.weeks later i went to my doctor for a test,few hours later i got the test result confirmed if i have be finally healed,i jumped and was really happy. So friends is if you have such sickness or any other problem at all you can email him on : dr.okpoduspellhome@gmail.com) And he also treats GENITAL WARTS,GONORRHEA, HIV/AIDS , LOW SPERM COUNT, MENOPAUSE DISEASE, PREGNANCY PROBLEM, SHORTSIGHTEDNESS PROBLEM, STROKE, Bring back ex lover or wife/husband.... DR thank you for the help i will forever remain greatful for your help. friends Please Only DR OKPODU Have The Cure To Herpes!!! contact him now on dr.okpoduspellhome@gmail.com and on whatsapp +2347053411686

    ReplyDelete